Responsible Use of Clinical Data for Research Purposes
Adrian Thorogood (Keynote Speaker, Bioinformatics Core and ELIXIR-LU, Luxembourg Centre for Systems Biomedicine, University of Luxembourg): Sharing healthcare data across borders: Connecting national initiatives through governance and standards
Anja Köngeter (National Center for Tumor Diseases (NCT) Heidelberg): Expert opinions on the potential and risks of secondary use of clinical data for biomedical research
Martin Jungkunz (National Center for Tumor Diseases (NCT) Heidelberg): To share or not to share? Moral responsibilities of patients and physicians to support secondary use of clinical data for biomedical research.
Markus Spitz (Law School, Heidelberg University): Is patient consent always necessary to use clinical data for biomedical research?
Eva Winkler (National Center for Tumor Diseases (NCT) Heidelberg)
Kai Cornelius (University of Heidelberg)
Christoph Schickhardt (German Cancer Research Center (DKFZ))
The secondary use of clinical data for research purposes is increasingly recognized as a promising and crucial tool for improving health care and advancing medical research. Several initiatives strive to use data from medical care for secondary learning and research activities like. In Germany, for example, recent activities such as the Medical Informatics Initiative illustrate the increasing political and public awareness of the great potential of medical data. Because of the sensitivity of the data involved, the secondary use of clinical data in research raises ethical, legal, and social issues that will be addressed in the lectures. The lectures are part of the research project “Learning from Clinical Data (LinCDat)”. More information about the project at: https://www.nct-heidelberg.de/forschung/nct-core-services/nct-epoc/research/lincdat.html
Information and registration:
- Registered participants will receive the dial-in link by e-mail one day before the event.
- Registration is requested by 11.06.
- Participation is free of charge.